May 4, 2015
Well, by endocrinologist called with my results. Other than my elevated LH and FSH and low estrogen, all my labs were normal. She even commented that my iron levels, although higher than normal, were far, far lower than she anticipated. She said I'm doing an excellent job managing my hemochromatosis.
She did say her recommendation was estrogen therapy to stop the bone loss. However, she told me until we were done trying to have children, that was out of the question as HRT would do nothing to prevent my bone loss. Interesting because that is what everyone seems to recommend for POF. She said HRT was a low dose estrogen, usually given to post menopausal woman to help with symptoms like hot flashes, but it was not a high enough dose to prevent bone loss in a 35 year old woman. She would put me on birth control pills, which is a much higher dose estrogen until I was 51, at the typical menopausal age.
I think a lot of POF advocates would disagree with the above assessment as HRT is touted as helping to prevent bone loss. I honestly just don't know who or what to believe. In my heart, I don't like the idea of a lifetime of pharmaceuticals that have a list a mile long of side effects.
I did appreciate she didn't push the subject. She said I have to be ready to give up the thought of having a baby first. We scheduled a dexa scan for in two years. She said without therapy she didn't anticipate it getting better, but with calcium, vitamin D and weight bearing exercises hopefully it wouldn't worsen too much.
I did ask her about just having bone loss in the spine and she said there was a bit in my hips as well. They define bone loss as two standard deviations away from another woman my same age. So, -2 is the cut off. My hips were -2.1 and my spine -2.3. So, although it does show bone loss, I don't think it's too alarming to be so slightly below. Given my petite size and low body mass, it's typical to be on the low end of that bell curve.
I really don't like the thought of birth control for the rest of my life. I blame part of my issues on being on it for 15 years to start with. For now, I think I'll just concentrate on being healthy and supplementing. There are a few oils and supplements that are phytoestrogens that I'd like to try to incorporate (slowly so as not to disrupt a good thing I've got going here) to try and elevate my estrogen levels to prevent bone loss naturally.
But, as always, just trusting my body will get things in gear on it's own with God's healing hand.
Well, by endocrinologist called with my results. Other than my elevated LH and FSH and low estrogen, all my labs were normal. She even commented that my iron levels, although higher than normal, were far, far lower than she anticipated. She said I'm doing an excellent job managing my hemochromatosis.
She did say her recommendation was estrogen therapy to stop the bone loss. However, she told me until we were done trying to have children, that was out of the question as HRT would do nothing to prevent my bone loss. Interesting because that is what everyone seems to recommend for POF. She said HRT was a low dose estrogen, usually given to post menopausal woman to help with symptoms like hot flashes, but it was not a high enough dose to prevent bone loss in a 35 year old woman. She would put me on birth control pills, which is a much higher dose estrogen until I was 51, at the typical menopausal age.
I think a lot of POF advocates would disagree with the above assessment as HRT is touted as helping to prevent bone loss. I honestly just don't know who or what to believe. In my heart, I don't like the idea of a lifetime of pharmaceuticals that have a list a mile long of side effects.
I did appreciate she didn't push the subject. She said I have to be ready to give up the thought of having a baby first. We scheduled a dexa scan for in two years. She said without therapy she didn't anticipate it getting better, but with calcium, vitamin D and weight bearing exercises hopefully it wouldn't worsen too much.
I did ask her about just having bone loss in the spine and she said there was a bit in my hips as well. They define bone loss as two standard deviations away from another woman my same age. So, -2 is the cut off. My hips were -2.1 and my spine -2.3. So, although it does show bone loss, I don't think it's too alarming to be so slightly below. Given my petite size and low body mass, it's typical to be on the low end of that bell curve.
I really don't like the thought of birth control for the rest of my life. I blame part of my issues on being on it for 15 years to start with. For now, I think I'll just concentrate on being healthy and supplementing. There are a few oils and supplements that are phytoestrogens that I'd like to try to incorporate (slowly so as not to disrupt a good thing I've got going here) to try and elevate my estrogen levels to prevent bone loss naturally.
But, as always, just trusting my body will get things in gear on it's own with God's healing hand.
thank you so much for sharing your story. i can relate to your debate about what to do or go on to manage low estrogen.
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