Sometimes God has a different path in store for us. After being diagnosed with POF, I set out on a journey to "repair" my body and get pregnant naturally. Somewhere along the line, although pristine health and self care is my goal, the necessity to "prove" the doctors wrong became less important and we sought the perfect solution to grow our family. We decided on Embryo Donation / Adoption. Read about our journey. Blessings!
Showing posts with label osteoperosis. Show all posts
Showing posts with label osteoperosis. Show all posts

Bone Health

March 17, 2019

Alright, I've been honestly stressing out about all of this. It is echoing in my head. My bones depleted by 7% these last three years. Holy crud. In that time, I was basically pregnant or on hormones trying to get pregnant about a year...so I had the estrogen. Yikes. I'm also dealing with severely recessed gums. Last dentist exam instead of the usual, wow, your teeth are amazing, she said my oral hygiene wasn't as good. Excuse me? I brush a bazillion times per day, floss, use mouth wash. My gums are recessing faster. I have pockets. It's due to no estrogen.

I basically need to stick it out one more month to get the babies I donate breastmilk to, to one year. After that, I think I may need to bite the bullet and start the bioidenticals. My own son really only nurses morning and night now. When he's home, he will nurse at nap time or for emotional comfort. I think cutting back the pumping will help my body regain some nutrients. Pumping an extra 24-30 oz is a lot for a body to do. My endocrinologist did say some bone density will return once I wean.

I started taking the new calcium along with my other one. So now, I take two Young Living Super Cal Plus, two Garden of Life Raw Calcium. The Garden of life has the stronium in it, but a very, very small dose. I will start their Grow Bone once I wean. The reviews are fantastic and my endo gave me the go ahead. I also just started the Young Living BLM supplement. It has the glucosamine sulfate and collagen. I'm keeping up with the Biosil and current collagen I'm on as well. In a support group, someone mentioned taking Boron as well. Lo and behold, I did some research and very promising info. The raw calcium does have some, but since I'm doing a half dose of that, I did get a 3 mg supplement.

My sister in law suggested two workout sets, so I ordered these and these as well. The kiddos and I have been doing our exercises at night, I've been doing weights a few times a week, and I've been very diligent about making sure to at least take 20 minutes a day for a brisk walk. I'm doing jumping jacks every time I get up to get a drink or go to the bathroom from work, squatting holding my son, anything to fit in extra weight bearing exercise.

I think I feel panicky because I'm not doing everything I can, but I'm not emotionally done nursing and my son is nowhere near emotionally or physically done. I keep weighing my long term health vs where we're at now. I can't supplement with herbs or supplements, I'm nervous starting BHRT... Ugh. I just need to take a breath. The reality is, a few extra months won't do long term damage. I just need to do what I can and trust. I can start on the BHRT once I'm done donating. "Normal" women have estrogen in their blood and milk all the time...granted this isn't naturally produced, but the effects are the same. I absolutely despise I need medication. I pray for no ill effects.

I just want my body to cooperate...

On a lighter note...still meal kit obsessed! LOL We got our second Sunbasket delivery and it was delicious! Well, we all agreed the sesame crusted tuna and salmon nicoise was. I thought the blackened tempeh was ok, my husband was a hard no. Ah well. I knew it was taking a chance. I'm trying to shift more plant based. For my initial Sunbasket review go here.  So far, that is the one I've been most impressed by overall.

I'm excited to try out Hello Fresh this week. Stay tuned ;)


Doctor Consult

May 4, 2015

Well, by endocrinologist called with my results. Other than my elevated LH and FSH and low estrogen, all my labs were normal. She even commented that my iron levels, although higher than normal, were far, far lower than she anticipated. She said I'm doing an excellent job managing my hemochromatosis.

She did say her recommendation was estrogen therapy to stop the bone loss. However, she told me until we were done trying to have children, that was out of the question as HRT would do nothing to prevent my bone loss. Interesting because that is what everyone seems to recommend for POF. She said HRT was a low dose estrogen, usually given to post menopausal woman to help with symptoms like hot flashes, but it was not a high enough dose to prevent bone loss in a 35 year old woman. She would put me on birth control pills, which is a much higher dose estrogen until I was 51, at the typical menopausal age.

I think a lot of POF advocates would disagree with the above assessment as HRT is touted as helping to prevent bone loss. I honestly just don't know who or what to believe. In my heart, I don't like the idea of a lifetime of pharmaceuticals that have a list a mile long of side effects.

I did appreciate she didn't push the subject. She said I have to be ready to give up the thought of having a baby first. We scheduled a dexa scan for in two years. She said without therapy she didn't anticipate it getting better, but with calcium, vitamin D and weight bearing exercises hopefully it wouldn't worsen too much.

I did ask her about just having bone loss in the spine and she said there was a bit in my hips as well. They define bone loss as two standard deviations away from another woman my same age. So, -2 is the cut off. My hips were -2.1 and my spine -2.3. So, although it does show bone loss, I don't think it's too alarming to be so slightly below. Given my petite size and low body mass, it's typical to be on the low end of that bell curve.

I really don't like the thought of birth control for the rest of my life. I blame part of my issues on being on it for 15 years to start with. For now, I think I'll just concentrate on being healthy and supplementing. There are a few oils and supplements that are phytoestrogens that I'd like to try to incorporate (slowly so as not to disrupt a good thing I've got going here) to try and elevate my estrogen levels to prevent bone loss naturally.

But, as always, just trusting my body will get things in gear on it's own with God's healing hand.