Sometimes God has a different path in store for us. After being diagnosed with POF, I set out on a journey to "repair" my body and get pregnant naturally. Somewhere along the line, although pristine health and self care is my goal, the necessity to "prove" the doctors wrong became less important and we sought the perfect solution to grow our family. We decided on Embryo Donation / Adoption. Read about our journey. Blessings!
Showing posts with label osteoporosis. Show all posts
Showing posts with label osteoporosis. Show all posts

Endocrinologist Appointment

March 8, 2019

Well, yesterday I had the dreaded endocrinologist appointment following my DEXA scan, and the results weren't good. I knew I'd lost some bone mass, but was not prepared in the slightest to have my doctor walk in and suggest osteoporosis meds. Hard pass. My mouth dropped open.

As she reviewed my history she mentioned the last time I came in I had a two year old, to which I replied and I still do! Ha! Well, a six and a two year old. Her eyes got wide so I quickly chimed in through embryo donation...ahhhh. I also said I'm still nursing him and she got a bit quiet. Apparently, that took the osteoporosis med suggestion out of play since it's contraindicated.

Her next suggestion was estrogen therapy. I reminded her of my family history of estrogen driven cancers and added that since our last meeting my mom had also had uterine cancer and female cousin (40) had breast cancer. Again, she got quiet.

She was obviously deeply concerned, and I will hand it to her. She spent a lot of time while we hashed out and weighed all the options. She doesn't want me at risk for breast cancer, but at the rate my bones are deteriorating, I'd be in grave danger. As it stands, I'm still nursing so medications and even my herbal route from before are out.

She told me, very seriously, that I needed to make sure I was getting 1200 mg of calcium and 1000-2000 of Vitamin D a day. She said it could be from food or supplement, but I needed to ensure I was getting that much.

I've been taking Young Living's Super Cal Plus. The calcium levels are lower, but my understanding is it's more bioavailable to the body. As I researched calciums, the issue is a lot of people JUST take calcium or JUST calcium and D3. As I learned more about calcium, I started to see how controversial it is. Now, the controversy seems to be because people are just taking calcium supplements. Calcium by itself isn't absorbed by your body and what happens is it floats around and gathers in your arteries. This is what causes calcification and morphs into heart disease. In order for your bones to actually absorb the calcium, there needs to be adequate levels of calcium, D3, K2 and magnesium. People tend to overlook the K2 and magnesium. The Super Cal plus has all of them. It's enriched with essential oils that help make it more bioavailable and absorb better. I also like it is an algae sourced calcium.

I've also been drinking protein shakes that are calcuim rich. I add fortified almond milk, Orgain Superfoods protein powder and one scoop of Young Living's Balance complete which is higher in the calcium and fiber.

In addition to that, I looked more into Young Living's BLM. This one has glucosamine sulfate, collagen, MSM, Manganese and essential oils. As I broke down the ingredients, glucosamine sulfate has promising research that it can help bones heal faster. I haven't tried it yet, but put it on this month's order.

Another supplement I reviewed with my endocrinologist is strontium. Now, I've researched it before, but when I looked it up, it was suggested not to take while nursing, so I haven't taken it. When I brought it up though, she right away said she knew about it, there was promising stuff she knew about people using it in Australia and that since it wasn't FDA approved (it's a supplement) she couldn't prescribe it, but was totally fine with my taking it. Score.

Now, a heads up, when you google this one, strontium ranelate will pop up with red flags...THAT is a medication. Here is the deal when it comes to drugs and pharmaceuticals. You cannot market a natural mineral (like strontium.) In order to make money, drug companies must take a chemical constituent in a naturally occurring substance, make a synthetic version and THEN patent it. Ranelic acid is the synthetic compound used to create this drug. NATURAL strontium that is used in supplements in strontium citrate. As long as you are taking more calcium than strontium citrate, there have not been ANY adverse reactions reported in over 100 years.

I dug around and found a few good sources of natural strontium. Here is one and here. I love the GARDEN OF LIFE vitamin products and use this one for my multi vitamin. Now, I use the 50 and wise version because there is no iron. I have hemochromatosis so I can't have iron. If you need iron, search one of their other varieties.

So, my battle plan is to do weights a few times of week, be diligent walking and working out and once I wean my son start a bioidentical hormone therapy. I agreed to do a very low dose BHRT with a transdermal patch. She was going to prescribe oral, but I asked if transdermal would work. I want to bypass the liver processing the meds and lower my risk of blood clot and she agreed. It was funny, but when I asked for a bioidentical hormone she said my insurance didn't cover it. I said, I'm certain it does. She went on to explain they've no compounding pharmacies and was kind enough to humor me...so I pulled up this website and showed her that the FDA actually has several approved bioidentical hormones. The crazy part is the one she was going to prescribe was on there. Yay!

Here is the website so you can reference it. There are a lot of bioidentical ones available on the market that are covered by insurance so you don't have to spend hundreds a month at a compounding pharmacy.

I'm giving a shout out to my sister in law at Pod Performance. Beth is awesome. I text her asking for some recommendations on bone building workouts that would fit in my schedule (aka, no time at all.) She gave me a few suggestions that I could do when the kids were in the tub, when I was making dinner, etc. I need to make my bone health a priority, but have been freaking out how to fit it all in. Check out her page! 

After weaning, I will also start using my strontium supplement and a few other Young Living ones that are intended to support healthy hormones like Femigen and PD80/20. PD80/20 has DHEA which is the precurser to testosterone. There have been some positive studies about that one and bone health as well.

Right now, I'm using my calcium in addition to Ningxia red, multi greens, Life 9 probiotic, sulfurzyme, omegagize fish oil, Biosil  and a great collagen called Aminosculpt. I was diligently taking my minerals, and need to start that back up. I love Vital Earth's Fulvic Humic blend. It's not salty at all!

It was a discouraging day to say the least, but at least I've a game plan. I'm really upset I have to resort to medications, but I feel incredibly blessed that I had a doctor who listened to me, respected me, agreed with my concerns and found an option that I think is the best and safest method. How awesome is that?!

We considered my starting the BHRT now, but we both were a bit leery as I'm breastfeeding. The only contraindication really seems to be that my supply could dry up. BUT, as with any med, some gets in the breast milk, and we're talking about a hormone, soooo.... Makes me nervous. I'm also a milk donor. I don't want to mess with "stuff" in my milk that is going to another child.

I talked with the baby's mom yesterday about my doctor's visit. She actually watched my oldest while I went so he didn't have to sit in the waiting room with flu and colds and everything else! I talked to her about my visit and the options presented and she was too sweet to say that if I had to stop providing milk, my health came first. I told her following through to get her babies (she has twins - the boy relies on my milk) to a year is my goal and I'd committed that to her. They turn a year April 20th! A month and a half isn't going to make or break my bone health! I DID tell her though that at a year, I'd begin weaning from the pump. I don't mind my son nursing as long as he wants, but on some days I'm producing upwards of 30 oz for her. That's a lot of milk.

Something else I talked about with my endocrinologist is the fact I'd read about how breastfeeding can lower bone density temporarily and she verified that. When I'm done nursing, some bone density should come back. Not all I've lost, but a bit. That was reassuring.

Well, I've rambled long enough. It was a very emotional day. I feel so frustrated. My health overall, is good. I feel great. I've never been healthier. I don't get sick. I've good energy. And then this... I've no control over it and it's so frustrating and disheartening. I'm very type A in control and not having it...UGH!

As always, God Bless!

Mindful Living

Jan. 16, 2018

I was heading to bed last night, and while I was praying, this blog kept coming to my mind. When I started it, it was all about healthy living and changes to support my health. It was more focused on fertility at the time, but my attitude of the TCM philosophy of whole body wellness certainly has carried over into my family's day to day life.

It's funny, but this whole health crisis has done so much good for our life. Ironic, isn't it? The thing that just devastated me...saved me. I remember HATING the phrase "everything happens for a reason" and although I don't like it, because it diminishes actual pain and hurt you are experiencing at the time, there is an element of truth to it.

Without POF, I would never have analyzed our lives and found healthier solutions. I certainly wouldn't have our son. I cannot FATHOM that! We rid our lives of so many unnecessary toxins like candles, air fresheners, cleaners, personal care products with known endocrine disruptors (HELLO INFERTILITY RED FLAG!!!) We've attempted to eat whole, organic foods, although I will admit, I am not as good as I once was in this department. Working full time, taking care of the kids, I fall prey to more packaged foods than I care to, but I AM more conscious of the ingredients that are in them at least.

Premature Ovarian failure was my wake up call. Although this blog is all about my journey with fertility and embryo donation, it started as my journey back to health and wellness, so I'm taking the reigns again...although I may not be taking back my ovaries, I am sharing how I took back my life!

Bookmark www.ewg.org This will be your new bible. Download Think Dirty on your smart phone. You will scan scan scan all your products at the store with this.

First - get rid of the crap in your home. Seriously. Get rid of it. Any candle, air freshener, fragrance warmer - trash it. TRASH it! These are the LEADING causes of infertility and indoor pollution. You want lovely scents, stick with a diffuser.

Next, get rid of your cleaners with harsh chemicals. They are bad for you. They are bad for your kids. They are bad for your pets. They are bad for the environment. You do NOT need harsh chemicals to have a safe, clean environment. Vinegar, baking soda, non toxic cleaners will be your best friend. I make no secret, I love Young Living, and Thieves cleaner is where it's at. Seriously. It's like $22 wholesale for a bottle of concentrate that makes 20 bottles. It works out to about a buck a bottle and it is SAFE. It's BY FAR the best cleaner I've ever used and if you look up clinical studies it cleans as effective as bleach, lysol or any others on the market. You will not find an organic, plant based, non toxic cleaner anywhere that cheap. It smells awesome, and my five year old is in charge of cleaning.

Your dryer sheets. Trash them. They release harmful chemicals, are horrid for the environment and have endocrine disrupting fragrances that you not only breathe in while you dry your clothes, but then you actually WEAR them against your skin. Use wool dryer balls like these. These will shorten your dry time by 15 minutes or so and reduce static cling. If you have issues with static, put a safety pin in one. If you like your clothes to smell good, drop some essential oil on there. Some of my favorites are Purification, Lavender or Orange. Buy them here.

Stick with safer laundry detergents. Thieves laundry detergent is great. Rockin Green detergent in great. We love using our Eco Egg. Make sure you get the fragrance free - it uses minerals and you can do about 720 loads for under $40. Super cheap and effective.

Essential Oils are the big thing in our family we use to support our wellness. Things like Thieves, which has clove (high on the ORAC index for antioxidant) is something we use to support our immune systems daily. These are the essential oils I hold near and dear after experimenting with a lot of brands and doing a lot of research. You can do more research on this brand here. I choose oils for my family's wellness because they can literally support every single body system naturally, effectively and safely when used properly. A brief 101 email course is here.

I always encourage people starting out to invest in a Premium Starter Kit because it's affordable and takes the guess work out of what you need starting out. It already has the diffuser, and has eleven essential oils and blends that are the most popular, daily use oils. As a wholesale member you're privvy to 24% off retail pricing on all their oils, wellness products, supplements, cleaners, personal care, makeup, etc. You also can opt to enroll in their essential reward program and can be plugged in to all our educational groups. It's the introductory offer Young Living has where you get about $360 worth of products for $160. Well worth the investment in my opinion (and by now you know how thrifty I am...) It's literally supported every single body system including our immune, respiratory, limbic, hormonal, endocrine, skeletal, muscular,etc helped promote restful sleep, supported concentration, focus, energy, mood...did I mention one of the blends is literally called Stress Away.

We also use elderberries as a way to support our immune system. I buy them whole and make syrup, but you can purchase it premade as well here. I follow the wellness mama's recipe for syrup as well as the gummies. I've tweaked her recipe to include NingXia and Thieves.

Elderberry NingXia Red Thieves gummies

1 cup elderberry syrup
1/4 cup NingXia red
1/4 cup hot water
1/4 cup gelatin powder
Thieves vitality essential oil
silicone gummy bear molds

Add gelatin to 1/4 cup room temperature NingXia Red and whisk together. Add 1/4 cup hot water to dissolve. Add one cup elderberry syrup and add five drops Thieves vitality.

This usually makes enough to fill the above gummy molds and two mini muffin pans halfway. I give my five year old three gummies, one year old one gummy, and my husband and myself have a muffin tin gummy.

As far as things I use to support my body overall, I've continued taking my Smarty Pants prenatal vitamins. I like these in particular because they use folate not folic acid. They also do not contain iron. As someone with hemochromatosis, I can't have iron.  Other pregnant and breastfeeding women supplement with other iron supplements in addition to this. Some popular ones I've heard of are Rainbow Light  or Vitmamin Code.

I take an awesome bio available calcium supplement called Super Cal Plus sourced from red algae. It's a Young Living product. I was also very happy with Garden of Life calcium. Both of those option have the appropriate D3, K2 and magnesium to make absorption of the calcium possible in your body. Do NOT take a calcium supplement without those three additional vitamins. It can lead to calcification of the arteries. Your body does not absorb in into the bones.

Another thing I've learned in regards to bone health is the important of silica. When I learned about POF and heard all the horror stories about osteopenia and osteoporosis, everyone just stressed calcium. They are all not the same (see above) but no one told me about the PRECURSOR to your bones building themselves. They need silica to convert into collagen to convert into bones. Mind blown. A lot of the meds on the market harden your bones. What does that do...well, think of a vase. You drop it. It shatters. Do you want your bones doing that? Bones should be malleable. You want them strong, but they are living.

Look into a high quality silica. I use Biosil. I buy the drops like this and put them in capsules like this. You can also buy premade capsules of Biosil like this...making my own is just more cost effective ;) You can also drink Diatomaceous Earth. That's right - dirt!! It's incredibly high in silica which is beneficial for bones, teeth, nails and hair. Also, very cheap! Be sure you get food grade! You can also mix a grass fed collagen like the gelatin powder listed in the gummy recipe to up your collagen intake as well. A lot of people are deficient in magnesium so if the calcium above still don't do the trick, I recommend epsom salt baths (magnesium is absorbed best through the skin) or using Natural Calm Magnesium. You can also get a magnesium oil to rub on your feet at night before bed.

I take a high quality fish oil. I use Young Living's OmegaGize, but you can also get a great plant based DHA/EPA called Deva that is a vegan formulation. I like the OmegaGize also has CoQ10, which was important to my health before. I do take Vitamin C from Young Living as well, but I'm sure there are some great additional ones on the market.

I have started to embrace Apple Cider Vinegar. Bragg is an excellent brand that is raw and unfilited. It has the mother in it. I didn't put a link, because it's cheaper at a grocery store than online. You can just drink a bit in warm water with honey.

I love love love Progessence Plus. It is a Young Living serum, and it contains wild yam. Do your research on wild yam and see if it'd be beneficial to you. There are several supplements they have to support hormonal health, but as a nursing mom, I choose to wait until I wean my son to do anything that'd support hormonal function. I'm trusting God is keeping things running smoothly to keep my milk coming.

Whew...I think that is all the key things. I'm sure throughout the next few days I'll keep thinking of more and come back to edit and add. We've really come to view our bodies as things we support BEFORE there are issues. I equate it to a car. You fuel it up. It runs. You change the oil. It keep ticking. You rotate and air the tires. They work. You don't...disaster. The engine burns out. You get a flat tire. A small $2 fix turns into a $2000 fix.

I encourage you to get some exercise. Get your sleep. Meditate or pray. Practice preventative care. Find your happy. I started this journey to find health and happiness, and although it's a constant journey, I've learned so much along the way about self love.

In other news, I've a chest full of milk and found a wonderful organization called Human Milk 4 Human Babies. If you are on Facebook and overproduce, or under produce, look up your state. I feel so at peace that some of my excess milk is helping a little guy who was born 12 weeks premature. There are so many babies in need and so many moms who want to help people out who don't produce enough.

God bless!




Bone Scan

April 15, 2015

Just a quick update...

Yesterday, I went in for my bone scan. As many of you know osteoporosis is a huge concern within the POF community. Thankfully, after hearing absolute horror stories of how so many of your insurance companies wouldn't allow you scans because you weren't 65 years old yet (the age "normal" women start getting them) I had no problem at all. My OBGYN just had to put a lab request in and it was actually a "no charge" service under my health plan because it was considered preventative.

They did ask me over the phone, and in person if I was pregnant and I had to give my obligatory no (and I did take a test to make sure before I went.) It's really a quick and easy process. I laid on a table and they had an xray on top that scanned by hips and spine. They use two different x-rays to gather the probability of an osteoporosis based fracture in the next 10 years.

The technician said joking, yours will I'm sure be 0 because you are so young. I had to grimace and say, "yes, well, I'm here because I have premature ovarian failure, so although I look young, my body is menopausal." I couldn't help but see her shock. "But, you're so young!!"

"Yeah, crappy hand, huh?"

At least I could joke about it. I should have my results back in about a weeks time she said. The labs won't be posted online, but sent directly to my doctor, so I don't know how long it will take to get them from her. I'll keep you posted.

My hands off approach has been good for my mental and physical (read, emotional!!) health. I'm doing pretty good. I've a mad new passion for essential oils, which I'll have to write about in another post because it'd be a long one and have made some progress in the EA process. Again, another post for another day.

Just a reminder to all my POF sisters out there, be religious about your calcium, vitamin D and magnesium!!

God Bless!