Ugh Hormone Reality

October 26, 2018

Well, I bit the bullet and got my hormone panel run. I'll be honest, things have been stressful. I've been getting very little sleep, dealing with an ill fur baby, teaching several essential oil classes every week, rolling out new acting projects, working a full time job, doing the whole PTA thing, just wrapped a huge church event I was helping run AND trying to be as present as possible with my family. To say I've been stretched thin is an understatement. And, my body is apparently feeling it. Here I am educating people on healthy choices, completely running myself into the ground. Isn't that the way it goes? I make sure my kids are taken care of - good food, oiled up, adequate sleep...do I do the same for myself? Um, nope.

Oddly enough, other than a few hot flashes here and there, I've felt like my hormones were doing ok. I've attributed my lack of energy, poor focus and being short tempered to stress.  I've my little oil and supplement regimen, and apparently it's been working well enough to take the edge off, because I honestly haven't felt poorly and haven't been getting sick constantly like before. So, when I got my hormone panel, my spirits sank.

FSH 161.2
Estradiol <10 pg/ml

Right to the gut. I can't aggressively do anything homeopathic because I'm nursing. A lot of herbal supplements contain herbs I'm not comfortable using while breastfeeding. I know this is a poor excuse for not exercising or sleeping as I should, but I honestly can't find the time. It's clear I need to look at a bioidentical hormone replacement therapy of some sort. I need to think of long term health - bones, heart, mind... I'm also praying I can let my day job go or cut hours drastically. I'm on the verge of just being able to focus on essential oil education and acting. That brings such joy to me and oh man...if I could do something fulfilling with my time, that'd alleviate so much stress for me.

I do NOT want to wean. That, I am sure. I'm wondering if a hormone therapy will decrease milk supply. That will be fine for my son...I think he will still get plenty, but I'm feeling massive guilt. I've been donating milk the last year and have a long term family. There are twins, one with some physical and cognitive issues that I provide milk for everyday. I've been able to give him 16-24 oz per day and it's been beneficial for him. He doesn't tolerate formulas well. I know this may decrease my supply and I already know how stressed his mom is about trying to feed him and / or afford formulas. Ugh.

I've been crying this morning. I just feel so emotional about it all.

S, my sweet (almost) two year old is such a smart, inquisitive, headstrong little guy. He's incredibly smart, and it's been eye opening how that presents it's own challenges. People think he's three or four, but he's not even two. So, although he can communicate like an older child with full sentences and insightful questions, great memory, he even plays sports like an older child, catching, throwing, hitting, kicking, and impressively so...He'll sing songs, recite his alphabet, prayers and colors,...all these things that sound "impressive" or braggy, but my point is...he's not even two.  People don't know how to deal with him all the time, because emotionally, he's still a toddler. So, he does all these big boy things, and he has BIG feelings. Big. And, he doesn't know how to process them all the time. I think it's scary for him, so he has big reactions. I've found just holding him and hugging him until he can get control helps, but not everyone understands that. They yell or get frustrated with him and it absolutely breaks my heart. I know his emotions will catch up with that bright little mind of his, but until it does, I'm just so on edge advocating for him, making people try to understand he needs extra love and reassurance. He doesn't need grumbling and complaining and telling me he's acting out. One day that headstrong little personality will run an empire, of this I'm sure. I definitely don't need to worry about him and peer pressure...he'll tell those peers right where to go.

R, my oldest is dealing with his own set of needs. Kindergarten has been eye opening. There are a lot of children out there, I can't say mean spirited, because I don't think any child is, but who definitely have been shaped by different experiences. I feel like I'm constantly trying to encourage him to be strong in who he is, unique and proud. I've certainly gotten my first taste of having to let go and watch him struggle, and I'll be honest, it sucks. You have to let them live their life, and I need to step back and both equip him with social skills to stand up for himself, but not overstep. It's been a tightrope. He also is at an age where he is finding himself, his independence and that can have it's own set of challenges. He too, is very bright, and his TK program well equipped him, so there is a lot of review this year. The days he falls down to a lower color (behavioral chart) are the days we find he's "bored" and reviewing things. I want to swoop in there and tell the teacher to challenge him vs reprimand him, but again, gotta let the teacher do their job. Yeesh, this motherhood thing is tough.

Well, I'm clearly an emotional mess today. lol So, excuse my musings. Overall, life is good. I'm just grappling with how to take care of myself health wise in the best way possible.

I KNOW I do not want certain HRT. I am SO strongly opposed to medications derived from horse urine...from a moralistic standpoint, google how those are created. Animal cruelty plain and simple. I also don't agree with how so many synthetic hormones are metabolized in the body and not processed correctly leading to other issues and having various side effects. I know there are some good bioidenticals out there, just I'm not sure at this point if my insurance covers them.

Ah well, one foot in front of the other. I'm sure the answers will be presented. They always are. I haven't turned to prayer yet, so perhaps instead of my mind spinning...that is where I should start. Let go and let God...

Blessings.

National Infertility Awareness Week

April 24, 2018

A friend posted today about National Infertility Awareness Week and I was embarrassed to admit, I'd completely forgotten it was this week. I was glad for the reminder. I never want to forget or let other people forget that part of myself. It's shaped me into who I am and has blessed me beyond measure with my son. I also want people to know it's not abnormal. It should be isolating or embarrassing. One in eight people suffer from infertility and it's still taboo. It is personal on so many levels. It's a person's inherent right to reproduce. It's biology. To not be capable..it just plain hurts. It's suffering. It's loss. It's expensive. It's difficult on a marriage. It's getting your hopes up time and time again to have them dashed. It's suffering. It's pain. It's crying. It's confusion. It's anger. It's all those things wrapped into one.

I remember the day I was told I had premature ovarian failure and it was denial. The doctor must be wrong. I asked what they'd do about it. I mean...it was medicine. There was always an answer, right? Always a treatment. Always a next step. But no, nothing. Not a thing. Nothing. I remember hanging up and sobbing. How could this be?

You only need to look back at my blog entries to relive my journey. What I want to talk about today is my silver lining, because four years ago, I would never have believed there was one.

I'm glad for my infertility. There, I said it. Do I still catch myself thinking "if only it was that easy" to get pregnant? Sure. If only it wasn't so expensive? Sure. If only it didn't require, needles and pain and contracts and heartbreak? Sure. BUT, it was MY journey to get MY son.

In the support groups and the first thing everyone asks me who is toying with the idea of embryo donation asks me is "do you love him the same?" Or, "Did you ever worry if you'd love him like your own?" I think it's a legitimate question. It's a real question. I had the same one.

Yes! Oh my goodness yes. I wish I could shout from the rooftops and take over the internet to say, yes yes yes! You will LOVE this baby. This baby IS yours. He or she IS your own. DNA makeup means nothing in the scheme of love. I grew up with step parents and siblings - they aren't my blood, but they ARE my family. My son is not my DNA, but I will tell you this with all the mama bear certainty there is in the world, he IS my son. There is not a fiber of my being that can deny that. I'm a firm believer in God, and our God is an awesome God. I know that S was part of our family from the beginning and it was God's hand that placed him here. I cannot fathom a life without him in it. Our family wouldn't be the same. He is ours and we are his.

I want to reassure any of you out there contemplating any type of adoption or donor assisted birth, it will not matter. It won't. At all. I'm a rarity that I have a biological son and an embryo donated son. The love I have for both is the same. That protectiveness? The same. The I would lay down my life for them in a second? The same. I grew them in me. I birthed them. I nursed them. I've stayed up all night when they are sick, cried with them, laughed with them, been covered in their puke, pee, poop and snot and worried relentlessly over them.

I thank God everyday for the path that was laid for me. I don't begrudge God for it. I don't get mad over it. I don't wish it differently. I can't. To wish away my struggle would be to wish away my son.

For all of you women and men out there in the thick of it, my heart is with you. It hurts. I pray you find an answer to grow your family and extend to anyone wanting to know more about embryo donation that my door is always open. Love and peace your way.

#IAm1in8

April 14, 2018

April 14, 2018

Baby boy is 17 months! Wowza! We are still breastfeeding and going strong. In fact, I'm drowning in milk. I intentionally didn't pump this time thinking it'd tame my supply, but I was wrong. So, I gave up and started pumping, just for a few minutes a day because my breasts had marks from expressing. I've a freezer full and have been blessed enough to be donating to two families. One with a NICU miracle and one with a poor sweet baby who has horrendous eczema. Her mom suffers from a hormonal imbalance, and her breast milk was passing it to her baby. She came to pick up milk just covered in scales, bleeding. I felt horrible for her and worse for her poor baby girl. Thankfully, the milk seems to be helping. I've two dear friends on bedrest - one in the hospital since 27 weeks, the other just released from the hospital on strict bedrest now 31 weeks with twins. If either needs milk, I'll help. I figure, I can introduce pumping a bit if needed. Not my ideal long term, but feasible. I've a chest freezer full so my guy will have ample supply, even if I ever need to stop. It's strange, but since I started donating, I feel it's my civic duty so I don't mind pushing it for a bit of an oversupply. I was never able to donate blood because I was too petite and have hemochromatosis which nixed my chances, so I guess breastmilk is the next best thing, right?

I'm feeling pretty good. I've found if I forget to do my regimen of progessence plus and sclaressence I tend to feel it. I've also started including vitex (20 drops of a tincture) and two capsules of organic shatavari root per day to help support my hormonal system. I'd used them previously, and thought these two would be good to start up again as symptoms started increasing. They are both breastfeeding safe (of course chat with YOUR doctor should you choose to use them.) I've found when I follow my little protocol hot flashes and night sweats are diminished. Still keeping on with my other supplements. OmegaGize, Super Cal Plus, SmartyPants prenatals, Biosil and a Fulvic humeric blend of minerals, Natural Calm, NingXia red and my probiotic Life 9. I've started sulphurzyme once a day as well as it's high in MSM and wolfberry. I've started incoporating collagen as well to help with bone health. I still haven't had my follow up dexascan, but I'm feeling strong. It'll be interesting to see what it says when I go back.

The kids are great. S is a TALKER!! Holy moly! I've never heard a kid that young chatting up a storm. Full sentences and all. He's VERY smart. And, VERY stubborn. We will have our hands full. Very head strong. I guess he had to be to survive the freeze ;) Watching my two boys together seriously has to be the most heart warming thing I've ever seen. I love watching them together. They are best friends. It's amazing. Absolutely amazing. I cannot even think of my life without the two of them in it. My oldest son is now asking for a sister. He wanted one before and apparently the dream still lives on.

Work has been going ok. It's really tough to manage everything. Sometimes I just sigh that my house isn't as clean as I'd like or I don't have the things I'd like (I'll be honest, I'm embarassed. My shoes are now 8 years old, have holes and are discolored, but I'll be damned if my kids ever think they don't have the best life ever.) I felt funny today going to my son's school. They were riding for St. Jude and all the other kids brought a bike. We didn't. He has a scooter. Living in a townhome, we don't have a yard or block for him to ride on, and it's an added expense. I was embarrassed. Silly, right? These parents are my friends, yet I still felt judged. I know...in my head. I started looking for a used bike when we got home regardless. I look at prices in MI and know it'd be sooooo much easier financially. Our life is here though. My husbands job. Acting. My kids friends.

Thankfully, I've been starting to teach more essential oil classes with great attendance. My dream is to move to JUST educating about healthier lifestyle options and acting. I tremble to think lifestyle choice could render other women infertile. It infuriates me these products are on the market and advertising is so one sided. I just put my blinders on and speak and know my truth. It's fulfilling to me hearing how beneficial they've been to people. I pray constantly others will just try something to proactively protect themselves. I also had a nice week of auditions. Nothing since, but it felt invigorating to be back out there. That is where my heart is. I feel so alive on set. Telling stories. I pray and trust I'll work back into it.

There are days I would love love love another child. Others I know how blessed I am with my two boys and how difficult another child would be time wise and financially. The reality is, that is totally in God's hands. At this point, we don't intend to transfer again and I was given less than a one in ten million chance of conceiving before and I'm sure it's only diminished. I'm trying hard to cherish every single second. I nurse S through naps, I spend time cuddling my oldest at night after prayers...and quite frankly...I'm ok with it. Before, I'd have been so panicked to get that extra bit of work in. Now, I know how important these moments are. I can stay up an extra hour at night to work if needed. Visiting my friend at the hospital on bedrest for twins should've scared me...but being there...made me sentimental about my own babies. We still have an embryo and there are days I just watch Seeley with that nagging feeling what if they'd grabbed a different straw...he'd still be frozen. Who is that child in the straw? Are they suppose to be with our family too?

I truly do love motherhood. Every stage. Sure, I get stressed. I lose my temper. I get tired, but I love it. I do. At my weakest moments, I take a breath and give myself grace. It. Is. Hard. Anyone who tells you differently is delusional, or far better than I. My husband really struggles. I don't know if he could manage another child and he's the first to admit that. At times I find myself thinking back to what I "thought" my life would be. In premarital classes we wanted four kids. We were open to adoption, fostering. If we had the money. Truly, if we didn't have financial concerns, I'd be all for more kids. For fostering. For all of it. Finances cause so much stress on a family. Marriage.

I'm getting excited to head home to Michigan this summer. We'll be there for five weeks. It's be great for the kids. Poor S has only met his family aside from Nonna and Papa once when he was tiny. We're also going to AZ over Memorial Day to spend time with my in-laws. The kiddos will love it. I dread the drive, but night time driving is the best bet and makes in manageable.

You know...life is funny. I've said it before, but I'm feeling rather sentimental tonight. When I got slapped with this diagnosis, I thought the world as I knew it was over. And, I suppose it was. But, WOW! Wow. Wow. I catch myself thanking God every day now. Had someone told me I'd find gratitude or meaning in all this back then, my eyes would have rolled so far back in my head, and I may have punched them in the face...but I have. I am so, so grateful for my son. I cannot fathom a life without him in it. At all. He is utterly perfect. I've no doubt at all, this was my path, and he was destined to be part of us. If you've been diagnosed or are considering egg or embryo donation or adoption or fostering, I implore you have an open heart. I cannot explain the immense love you feel. The blessing. The peace. Quiet yourself, pray, open your heart and mind. Maybe it's not an option for you, but maybe it is. I'm in a unique situation to tell you biological or otherwise (because I have both) you will love your child however they come. There is no "difference." There is no less love. I promise you.

I'm also grateful it opened my eyes to living consciously and taking responsibility for life choices. Are we always perfect? Nope. But every day I take care at what I bring into our home or my kids or myself and my husband come into contact with. I wasn't that vigilant before and it upsets me the outcome that could have had for our children. Shit happens. I get it, but the reality is, when I met with my geneticist, they explained that only 5-10% of cancers and health issues are genetic. The rest? Lifestyle choices and environmental toxins and factors. A whole lotta nope there. I can't limit everything, but I sure will limit what I can.

I read back through some of these blogs and I'm so aware of how much I've grown over these past four years. My life is not perfect, but I live full of gratitude now. A crappy thing turned into the most beautiful blessing I could have ever asked for.

Peace and love to you all. God bless.

16 months old!

March 13, 2018

Wowza! Our sweet boy turned 16 months old a few days ago. I'm reeling. I'm not entirely sure how he's that old already. When they say it goes fast, it goes FAST! He's a smart, inquisitive, stubborn, hilarious, delightful little man. He's running, jumping, dancing and CLIMBING...oh, so much climbing. He's very chatty and talks a lot. His vocabulary is crazy impressive. He not only repeats everything, but uses it intentionally. Sentences and all. It's nice he's so communicative because he can tell us everything he wants. And, he'll tell us over and over and over...and is not thrilled when we don't oblige ;)

He loves helping and it sweet to see him mimic chores, patterns and get things for me like his shoes when it's time to go or his oils when it's time for bed. He's obsessed with Elsa and Ana after a recent Disneyland trip and Alexa plays it on repeat all day long. If it's not playing, S continually says "Ana Ana Ana Ana" until we turn it on. Loves puppies. Puppies puppies everywhere. He loves books and imitates how his brother plays with cars and trucks with them beeping and backing up.

It's been incredible to see the boys together. Our oldest son is wonderful with him. Includes him, cares for him, helps with him. Sometimes I have to remind him to not play so hard with him, but it's hard to enforce when S is giggling uncontrollably and tackling him back. I've a feeling these two will be quite the hand full. When R is at school he'll ask over and over "Where's "R"?" and giggles uncontrollably and dances when he gets home. His favorite is playing in R's classroom when we go to pick him up.

Me, I'm glad to have gotten back into acting. I got new headshots and have been fortunate enough to have a few auditions. It feels nice to be back in the swing of things. Walking into a casting office is just invigorating. Some actors hate auditioning...I love it. Granted, I like booking and working more, but the auditioning doesn't bum me out. I'm grateful for each call. Every time I walk on a studio lot I say a big thank you to the Lord above that I'm actually doing it and pursuing the dream that seemed impossible to the girl in Michigan growing up.

Work has been tough. There's not enough hours. Sometimes I get overwhelmed. I feel like I'm in this bizarre dynamic of a stay at home / work at home mom, but fill time working mom, but mom. I can't describe it. I know every mom works her tail off. I just wish I could be one or the other.

The boys go to daycare three days, so I try to fit as many hours as I can in there, but the rest are after bedtime. Once I get them fed, to bed, things cleaned up, lunches packed, the house picked up...I'm tired. Absolutely exhausted, yet I have to work. Then I'm up at night nursing, back up in the morning with the kids to do it all over.

I've been transitioning more to focusing on educating about essential oils. Fortunately, that has been covering some gaps for us financially, and, I'll be honest. I love it. Love it. I know so much of the health turmoils I faced was from the junk in my home, foods, products...I love offering an alternative to people who want safer products. My ultimate goal is to JUST act and teach about healthy choices. I'm reaching for them more and more. I've always used a ton of the oils and transitioned all my personal care, makeup, cleaners to Young Living a while ago, but I'm incorporating more and more of the supplements now. I can happily say that as everyone around us was dropping like flies, our family stayed relatively healthy. Aside from a minor cold for my baby and husband, we're all healthy as can be. And, looking at the little sleep I've gotten...three cheers for that. I also can't say enough about elderberry syrup. Legit.

The bummer is, some POF symptoms have started to creep in. More irritability, brain fog and hot flashes. My night sweats started, but I've been using a serum called Progessence Plus to support my hormonal health and they are no more. For hot flashes, I've started using Sclaressence. I either make a capsule with a drop of Sclaressence vitality and take it immediately after nursing my son in the morning, or use the Sclaressence on my ankles throughout the day if I feel I need extra support. I've kept things manageable. Oddly enough, I've turned to the oils for irritability and brain fog as well. They've a lot of emotional support oils that have been good for me to just release pent up emotion and I diffuse peppermint or rosemary and orange when I'm feeling really scattered.

Fortunately, our housing crisis was averted. We thought we were losing our lease, but our landlords opted not to sell, so we are here two more years. A rent increase, but stability. Hallelujah! It works out great because our oldest started Kindergarten next year and it will be directly across the street.

Other than that...nothing big to share. I look at my little family and think sometimes how I'd love to have another child. I know my husband isn't there now, so I keep those thoughts fleeting, but my babies are so incredibly special. If it were up to my, if we had no financial concerns, I'd absolutely have another. My oldest son asks me several times a week when his sister will arrive. I keep trying to explain to him I'm not pregnant, and he says he knows, but he's going to have a sister. Sometimes from my belly, sometimes from somewhere else... I can't help but wonder what God has in store. I'd still be very open to foster to adopt, but I'm not sure my husband would like that. Kids, let's face it, can be exhausting. A lot of children in the foster system come with issues that would require certain patience and understanding, parent visits, red tape, foster workers...it'd be a lot.

I just ask God everyday to set our path. Professionally. Personally. For our family. For our impact and outreach for others. Today though, I savor the moments with my babies. They are growing so fast, and I'm desperately trying to be present in each moment.

God bless!

Lump Update

Feb. 2, 2018

Well, the update on the lump is there is no update. They couldn't see it. At all. To tell you the truth, I went into the appointment pretty peaceful. Random moments of what if, but overall, feeling pretty good. I'd get an answer. Bad news with how to proceed, or good news to put my mind at ease. Instead...nothing. No.Thing. Grrrr.

I arrived early and met with the genetic counselor who gave me a little box to take to the lab. Because my grandma, maternal and paternal aunt, and maternal cousin have had breast cancer (cousin at 42) they decided to run a full panel of 27 genes for breast cancer, ovarian cancer and colon cancer. It was free, so I said why not. I see no disadvantage. I was able to give her the paperwork from my aunt and cousin's genetic testing as well.

I'd spoken in advance with my genetic counselor and she arranged with the lactation department to rent a pump if they needed a bilateral mammogram. She was incredibly helpful.

So, I showed up to my appointment and was ushered in by a tech all business. I told her I had a bottle if I should express milk and she said don't bother. Just put the robe on open side up and lay down. Easy enough. I felt like I had a bit of milk, but trusted her. She did a quick look at my right breast (with the lump) and left breast and said nothing abnormal. I looked at her like, are you nuts. It was two minutes total, if that.

"Well, the doctor said if it was nothing you'd be able to tell."

Silence.

"If there was a cyst or something else there, wouldn't you be able to see it?"

"Yes."

"Well, something is there. I'm a little concerned you can't see anything one way or the other."

Silence.

I asked her if I could express some milk to feel the lump better, so she excused herself for about two minutes. I emptied about 1.5 oz and she came back in. Put the wand up and said all normal. I had to literally take her hand and put it on the lump. "Do you feel that?" "Yes, it's small."

Yeah...but there. She did a quick scan again and said all clear. At this point, I'm starting to feel very uncomfortable about all this. Something should show. Something. She dismissed it as normal breast tissue or a duct.

"Well...a duct should empty and fill, right?"

"Yes."

"Why does this stay the same then? And, small and hard?"

"I don't know, but nothing shows up."

At this point, she tells me she can't do a mammogram because I'm nursing and says if I want to wean, I can come back in a few weeks and they will do one. I told her I've no desire to wean if it's not a medical necessity and she tells me...I kid you not... "Aren't you suppose to wean by one anyway?"

I literally felt my blood pressure rise. "No. They encourage you to breastfeed UNTIL one years old at a minimum, but you can nurse as long as you like."

She smirks. "Well, he's old enough, you can wean whenever."

Me shooting daggers. My internal monologue is "I don't want your parenting advice, thank you very much. Just do your job and find the damn lump." *apologies for the language*

So, what to do?? Wait and see? She said just monitor it. If it gets larger, ask my doctor for another referral. Ooookkkaaaayyyy... Very uneasy. I left. She took the initial images from her two minute ultrasound to the radiologist who saw nothing, so what else can I do?

I emailed my doctor saying they didn't see anything, did she feel it warranted a second opinion? Watching and waiting? An MRI? My aunt and cousin, both breast cancer warrior survivors really are pushing for the MRI. I went on a few forums last night trying to see people who had a lump and it not showing up on an ultrasound and it was unnerving. Advice - never go into cancer forums before bedtime. yeesh.

So, I wait for the doctor. I don't like being a "problem patient" but with my history, I'd feel much more calm with an official, it's nothing to worry about, the MRI was unnecessary than a "you should have pursued this sooner six months or a year down the road."

So, as it stands I will obsessively feel my lump assessing any changes.

Non lump related, I'm looking forward to a little family time this weekend. It's been incredibly warm here, so perhaps a nice hike.

God bless.

Lump

Jan. 24, 2018

Ahhhh, the milk makers. Classy, right? Ok, I jest, kind of. I'm very prone to clogged ducts. I'm an oversupplier. So, when I found a lump a few weeks ago I shrugged it off. BUT, because I'm so prone to clogged ducts, I know them well. This was not so. No inflammation, no swelling, no pain, no milk backed up, no mastisis. No amount of massaging, heating, dangle feeding will make this one budge. So, may as well make sure it's nothing right?

I had a little health scare a month with a ginormous swollen lymph node. We're talking a golf ball on my neck. Mild panic around the doctors offices, sending me to the lab and xrays immediately, ushering me into specialists within 24 hrs, CTs and biopsies scheduled. Turned out, just an infection. I was able to cancel the CT and biopsy when the swelling went down on it's own considerable within 48 hrs. Within two weeks, it was gone.

So...I'm hoping this is all the same thing. It is on the same side...mental note to bring that up to the doc. Anyway, I went in today and she found the bump easily without my pointing it out. "Oh, yup. Right here. It kind of has something extending too." I felt that too, but thought it was my imagination.

It's hard. Pea size and right up against my chest wall. If you press it against the rib, it's very noticeable or dangle and press into the breast tissue. She said it could be a gamut of things. Cyst, fibrous tissue, possible even a node or duct that had a bit of infection - but I'd most likely be experiencing signs of infection, so we're thinking that's not it.

She asked if breast cancer ran in the family. Sadly, yes. Grandma, two aunts and a cousin. Any other female cancers like uterine or ovarian...well, yes, my mom. Oooookay. So, she also suggests genetic testing. My aunt and cousin didn't have the carrier for breast cancer, but my aunt on the paternal side didn't get it. I'm still optimistic I'm in the clear ;)

Because I'm breastfeeding, mammogram is ruled out. I'm under 40 with fibrous tissue and a lot of active ducts and nodes in there that'd just make it a nightmare to read. I'm grateful. I know mammograms save lives, but if we already KNOW there is a mass, unnecessary radiation doesn't sound ideal to me...and quite honestly ridiculously painful and messy - I pity the radiologist squishing all that milk out, and sounds like a barrel of clogged ducts and inflammation after. Ouch. She concurred. We'd be doing an unnecessary procedure where we know we'd move to diagnostic ultrasound anyway. (By the way, as I did some research ahead of time, most insurances now will allow breast ultra sounds once a year instead of mammograms if you know how to push the issue - no radiation and more detailed imagery. If they do require mammograms, you can always ask if your provider will do thermal imaging to lessen exposure to radiation.) So, ultrasound scheduled for next Thursday.

As I was with the nurse scheduling it, she came out and said as she was putting in the orders, she is trusting her gut...between family history and the feel, she wanted to put in an order for a diagnostic bilateral mammogram in case the u/s looks like further steps are necessary. She said it'd be good to have the order in place so they can do it immediately versus place the order, wait for her to sign off and around and around we go. They don't like to do those on nursing moms (explanation above) but she thought that'd be a necessary step at that point to see how far the growth extended to know the next plan of action. Hopefully, it will be a mute point and not required.

So, I play the waiting game again, to hopefully get the all clear :) I'm very optimistic all is fine. The lymph was a pretty horrifying sight, lol, and I remained calm throughout all that. My feeling was it's either nothing, or cancer, but caught way early with providers who were crazy proficient and moving very quickly and proactively. Same here.

Until then, toss up a few prayers for lumpy or nodey breasts. I'll slather on some peace and calming oils, have a few chats with the Big Guy upstairs and enjoy some extra cuddles and nursing sessions knowing these ladies have provided life, love and comfort to two little guys and they'll continue to do the job they were made to do as long as necessary.

God bless.

Milk Donation

Jan. 17, 2018

I touched yesterday on milk donation. I'm a chronic over producer. In the early days it irritated me. It was constant engorgement, discomfort, blocked ducts and pain. I still get annoyed time to time and wrestle with the occasional blocked duct - all you ladies out there doing the dangle feed...holla!

BUT, I realize how blessed I am. I never had to scramble for food or slave over lactation cookies (although those buggers are good, right?? or take additional supplements like fenugreek or brewers yeast.) Don't get me wrong - fed is best and thank God for formulas, right? There are kids though that can't tolerate formula or need a little extra support breast milk can provide.

I filled up my chest freezer to the brim. There ain't no more room in there. With my first son, I had to wean at 14 months and my stash got us to 18 months of liquid gold. Now that S has officially hit 14 months and I'm still going strong nursing and my health is good, I feel comfortable giving away some of that to a baby that needs it. I wrestled 46 bags out - about 250 oz and donated it today to a mom whose son was in the NICU for several months. He came very early and she's only able to produce about 1 oz at a time. I felt so good that my milk didn't go to waste as it was creeping up on the 9-12 month mark.

I didn't know about Human Milk 4 Human Babies until I was trying to donate it to anyone local and someone clued me in. Ladies - if you are an overproducer - get in there. If you are an underproducer and would like to supplement with donated milk - get in there! Search Human Milk 4 Human Babies and your state on Facebook. NO SELLING! Ugh. A nightmare of a woman in there with a sob story about needing milk for her baby was just caught accepting DONATED milk and selling it - karma baby. Karma! Makes me sick.

There are organizations you can use to donate to hospitals as well, but this mama drinks a cup of coffee in the am and uses essential oils which some programs don't allow. Heck, most don't allow any supplements aside from prenatals and some are very strict on your diet. In this group, you share honestly your lifestyle and people choose to accept your milk if it fits their stipulations. Example, some babies can't tolerate dairy, so list that as a recipient you need donated milk no dairy - or search a donor for a no dairy diet.

I'll be real with you. My child...is the result of donation. He would not EXIST without the sacrifice, heart and love of our donors. Finding this group has given me an excitement to maybe repay that in a teeny tiny microscopic way.

Human Milk 4 Human Babies!

Get in there!

Mindful Living

Jan. 16, 2018

I was heading to bed last night, and while I was praying, this blog kept coming to my mind. When I started it, it was all about healthy living and changes to support my health. It was more focused on fertility at the time, but my attitude of the TCM philosophy of whole body wellness certainly has carried over into my family's day to day life.

It's funny, but this whole health crisis has done so much good for our life. Ironic, isn't it? The thing that just devastated me...saved me. I remember HATING the phrase "everything happens for a reason" and although I don't like it, because it diminishes actual pain and hurt you are experiencing at the time, there is an element of truth to it.

Without POF, I would never have analyzed our lives and found healthier solutions. I certainly wouldn't have our son. I cannot FATHOM that! We rid our lives of so many unnecessary toxins like candles, air fresheners, cleaners, personal care products with known endocrine disruptors (HELLO INFERTILITY RED FLAG!!!) We've attempted to eat whole, organic foods, although I will admit, I am not as good as I once was in this department. Working full time, taking care of the kids, I fall prey to more packaged foods than I care to, but I AM more conscious of the ingredients that are in them at least.

Premature Ovarian failure was my wake up call. Although this blog is all about my journey with fertility and embryo donation, it started as my journey back to health and wellness, so I'm taking the reigns again...although I may not be taking back my ovaries, I am sharing how I took back my life!

Bookmark www.ewg.org This will be your new bible. Download Think Dirty on your smart phone. You will scan scan scan all your products at the store with this.

First - get rid of the crap in your home. Seriously. Get rid of it. Any candle, air freshener, fragrance warmer - trash it. TRASH it! These are the LEADING causes of infertility and indoor pollution. You want lovely scents, stick with a diffuser.

Next, get rid of your cleaners with harsh chemicals. They are bad for you. They are bad for your kids. They are bad for your pets. They are bad for the environment. You do NOT need harsh chemicals to have a safe, clean environment. Vinegar, baking soda, non toxic cleaners will be your best friend. I make no secret, I love Young Living, and Thieves cleaner is where it's at. Seriously. It's like $22 wholesale for a bottle of concentrate that makes 20 bottles. It works out to about a buck a bottle and it is SAFE. It's BY FAR the best cleaner I've ever used and if you look up clinical studies it cleans as effective as bleach, lysol or any others on the market. You will not find an organic, plant based, non toxic cleaner anywhere that cheap. It smells awesome, and my five year old is in charge of cleaning.

Your dryer sheets. Trash them. They release harmful chemicals, are horrid for the environment and have endocrine disrupting fragrances that you not only breathe in while you dry your clothes, but then you actually WEAR them against your skin. Use wool dryer balls like these. These will shorten your dry time by 15 minutes or so and reduce static cling. If you have issues with static, put a safety pin in one. If you like your clothes to smell good, drop some essential oil on there. Some of my favorites are Purification, Lavender or Orange. Buy them here.

Stick with safer laundry detergents. Thieves laundry detergent is great. Rockin Green detergent in great. We love using our Eco Egg. Make sure you get the fragrance free - it uses minerals and you can do about 720 loads for under $40. Super cheap and effective.

Essential Oils are the big thing in our family we use to support our wellness. Things like Thieves, which has clove (high on the ORAC index for antioxidant) is something we use to support our immune systems daily. These are the essential oils I hold near and dear after experimenting with a lot of brands and doing a lot of research. You can do more research on this brand here. I choose oils for my family's wellness because they can literally support every single body system naturally, effectively and safely when used properly. A brief 101 email course is here.

I always encourage people starting out to invest in a Premium Starter Kit because it's affordable and takes the guess work out of what you need starting out. It already has the diffuser, and has eleven essential oils and blends that are the most popular, daily use oils. As a wholesale member you're privvy to 24% off retail pricing on all their oils, wellness products, supplements, cleaners, personal care, makeup, etc. You also can opt to enroll in their essential reward program and can be plugged in to all our educational groups. It's the introductory offer Young Living has where you get about $360 worth of products for $160. Well worth the investment in my opinion (and by now you know how thrifty I am...) It's literally supported every single body system including our immune, respiratory, limbic, hormonal, endocrine, skeletal, muscular,etc helped promote restful sleep, supported concentration, focus, energy, mood...did I mention one of the blends is literally called Stress Away.

We also use elderberries as a way to support our immune system. I buy them whole and make syrup, but you can purchase it premade as well here. I follow the wellness mama's recipe for syrup as well as the gummies. I've tweaked her recipe to include NingXia and Thieves.

Elderberry NingXia Red Thieves gummies

1 cup elderberry syrup
1/4 cup NingXia red
1/4 cup hot water
1/4 cup gelatin powder
Thieves vitality essential oil
silicone gummy bear molds

Add gelatin to 1/4 cup room temperature NingXia Red and whisk together. Add 1/4 cup hot water to dissolve. Add one cup elderberry syrup and add five drops Thieves vitality.

This usually makes enough to fill the above gummy molds and two mini muffin pans halfway. I give my five year old three gummies, one year old one gummy, and my husband and myself have a muffin tin gummy.

As far as things I use to support my body overall, I've continued taking my Smarty Pants prenatal vitamins. I like these in particular because they use folate not folic acid. They also do not contain iron. As someone with hemochromatosis, I can't have iron.  Other pregnant and breastfeeding women supplement with other iron supplements in addition to this. Some popular ones I've heard of are Rainbow Light  or Vitmamin Code.

I take an awesome bio available calcium supplement called Super Cal Plus sourced from red algae. It's a Young Living product. I was also very happy with Garden of Life calcium. Both of those option have the appropriate D3, K2 and magnesium to make absorption of the calcium possible in your body. Do NOT take a calcium supplement without those three additional vitamins. It can lead to calcification of the arteries. Your body does not absorb in into the bones.

Another thing I've learned in regards to bone health is the important of silica. When I learned about POF and heard all the horror stories about osteopenia and osteoporosis, everyone just stressed calcium. They are all not the same (see above) but no one told me about the PRECURSOR to your bones building themselves. They need silica to convert into collagen to convert into bones. Mind blown. A lot of the meds on the market harden your bones. What does that do...well, think of a vase. You drop it. It shatters. Do you want your bones doing that? Bones should be malleable. You want them strong, but they are living.

Look into a high quality silica. I use Biosil. I buy the drops like this and put them in capsules like this. You can also buy premade capsules of Biosil like this...making my own is just more cost effective ;) You can also drink Diatomaceous Earth. That's right - dirt!! It's incredibly high in silica which is beneficial for bones, teeth, nails and hair. Also, very cheap! Be sure you get food grade! You can also mix a grass fed collagen like the gelatin powder listed in the gummy recipe to up your collagen intake as well. A lot of people are deficient in magnesium so if the calcium above still don't do the trick, I recommend epsom salt baths (magnesium is absorbed best through the skin) or using Natural Calm Magnesium. You can also get a magnesium oil to rub on your feet at night before bed.

I take a high quality fish oil. I use Young Living's OmegaGize, but you can also get a great plant based DHA/EPA called Deva that is a vegan formulation. I like the OmegaGize also has CoQ10, which was important to my health before. I do take Vitamin C from Young Living as well, but I'm sure there are some great additional ones on the market.

I have started to embrace Apple Cider Vinegar. Bragg is an excellent brand that is raw and unfilited. It has the mother in it. I didn't put a link, because it's cheaper at a grocery store than online. You can just drink a bit in warm water with honey.

I love love love Progessence Plus. It is a Young Living serum, and it contains wild yam. Do your research on wild yam and see if it'd be beneficial to you. There are several supplements they have to support hormonal health, but as a nursing mom, I choose to wait until I wean my son to do anything that'd support hormonal function. I'm trusting God is keeping things running smoothly to keep my milk coming.

Whew...I think that is all the key things. I'm sure throughout the next few days I'll keep thinking of more and come back to edit and add. We've really come to view our bodies as things we support BEFORE there are issues. I equate it to a car. You fuel it up. It runs. You change the oil. It keep ticking. You rotate and air the tires. They work. You don't...disaster. The engine burns out. You get a flat tire. A small $2 fix turns into a $2000 fix.

I encourage you to get some exercise. Get your sleep. Meditate or pray. Practice preventative care. Find your happy. I started this journey to find health and happiness, and although it's a constant journey, I've learned so much along the way about self love.

In other news, I've a chest full of milk and found a wonderful organization called Human Milk 4 Human Babies. If you are on Facebook and overproduce, or under produce, look up your state. I feel so at peace that some of my excess milk is helping a little guy who was born 12 weeks premature. There are so many babies in need and so many moms who want to help people out who don't produce enough.

God bless!

A chance meeting

Jan. 8, 2018

I'm nearing four years since my diagnosis. Last night, I went back through all my emails from my doctor to see the exact day. Jan. 14 was the day I received the email with haywire hormonal levels. New Years is always the time it's all kind of fresh in my thoughts. It was New Year's Eve I took a pregnancy test to judge if I could have a glass of champagne, so those feelings of excitement at being pregnant and then all the emotions that followed of a miscarriage, then not...to being irriversably infertile, to embryo donation to mommyhood again. Quite the journey. People offer condolenses all the time and I say "Don't." Sure, it sucked at the time, but I wouldn't have my son. I'd live that day over and over and over again knowing I get to hold this precious boy in my arms.

Yesterday in the nursery at church another mom asked me where S gets his curly hair. 

Typically, I just comment how genes are funny or something to not get into the whole thing of it in passing, but for some reason I responded “Well, he has a unique story...” and shared our journey. Her eyes filled with tears and she told me her baby now was a complete surprise, but after her first they were diagnosed with secondary infertility. They’d done ivf for their second child and they’d leftover embryos. She’d heard of EDA but couldn’t bear to give their child away and they were going to donate them to science, but after knowing me and seeing Seeley and me together she didn’t think she could. 

Their contract was up this month for storage and they had to make a decision very soon. She told me she'd never met someone who'd been involved in the process. Both of us teary eyed, I asked her to consider donation, that I couldn't fathom life without this little boy. I brushed those curly locks and said he wouldn't be alive without our donor's making a choice to donate.

She asked questions regarding our situation. If we were open, anonymous, and I answered them all. I offered to set her up in support groups for mixed or just donors if she wanted. She didn't know if there were enough recipients out there and I reassured her there were dozens of couples, women and even men waiting for every donor that opted to donate. 

Her husband and herself had been going back and forth for months and had come to the decision he would draw up the paperwork and make a decision without her knowledge so she could be at peace. After us talking, she told me she was going to talk to her husband, and she felt clear on what she should do. Tearfully, she said God put me in her path. Tearfully, I told her the Spirit prompted me to share our story, because typically, I don't tell it in passing. I’m so glad I shared with her. I’d no idea. I’m glad she was open to it, and I hope another family is blessed. I pray they donate and bless a family and allow those precious little embryos a chance at life to run and thrive like my little boy. He's such a blessing. So loved. So cherished. So full of life and love.

I'm so blessed. God is good.